This site is intended for patients in Great Britain (England, Scotland and Wales) who have been prescribed PIQRAY®▼ (alpelisib) + fulvestrant.

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Need support?

We all need help and support from those around us. This can be especially true when you are living with advanced breast cancer (aBC). Not only are you managing your disease and your treatment, but you are also managing your day-to-day life.

Having those hard discussions

Talking with people about your aBC can be difficult, as it is an emotional topic; however, a little bit of planning can help make it easier, and take some of the stress out of it. Make a list of the people you would like to talk to, and how you will talk to them (in person, by phone etc.). Make sure you are sitting down comfortably, explain why, and be ready to tell people how they can help if they offer to.

If you are talking to children, it is important to give very simple explanations of what is happening, repeating it to them often.1 You may want to use a doll to show where the cancer is in your body.1 Explain that they cannot “catch” cancer from you1 and it is a good idea to keep the conversation short, giving them a lot of opportunities to ask any questions. Check the child understands what you have told them, and reassure them that you can still have a lot of fun together.

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Finding support when you need it  

Do not be afraid to ask for help, and be sure to ask the people who you think will be the best equipped to help the most. Who is a good listener? Who has a car that they can use in the day to help with chores? Asking for help shows real strength, and other people usually respond well when they are asked to help. In fact, people often want to be able to be useful, and may be able to help with chores during the day.

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Charities

Some people like to read about the experiences of other people living with cancer. It may provide you with comfort. There are cancer charities that provide forums for patients to share their experiences, and which also offer you support with understanding and managing your cancer. These charities can offer both practical and emotional support. Please click on the links below to be taken to some selected cancer charity websites.

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At Breast Cancer Now, we’re here for anyone affected by breast cancer. Our breast cancer nurses, expertly trained staff and volunteers, and award-winning information make sure you can get the support you need to help you live well with the physical and emotional impact of breast cancer.

For breast cancer care, support and information, call us free on 0808 800 6000 or visit www.breastcancernow.org

Macmillan Cancer Support help everyone living with cancer live life as fully as they can, providing physical, financial and emotional support. So whatever cancer throws your way, we’re right there with you.

For information, support or just someone to talk to, call 0808 808 0000 or visit www.macmillan.org.uk

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Read the Piqray® patient brochure for even more about getting support during this time

Where would you like to go next? 

Abbreviation

aBC, advanced breast cancer.
 

Reference

  1. Dana-Farber Cancer Institute. For parents: talking with children about cancer. Available at: https://www.dana-farber.org/for-patients-and-families/care-and-treatment/support-services-and-amenities/family-connections/for-the-patient/talking-with-children-about-cancer/. [Accessed November 2021].

▼This medicine is subject to additional monitoring. This will allow quick identification of new safety information. You can help by reporting any side effects you may get. See www.mhra.gov.uk/yellowcard for how to report side effects.

UK | January 2022 | 147277